Unexpected - Go Fund Me

I have been gradually made aware of all the people who have funded my Go Fund Me pages. They mean so much to me. More than you will ever know. Thank you so much.

Update on Pamela's Condition

We, as Pam's family, wanted to give everyone a status update.  She last posted a week ago that she was admitted to UNC Chapel Hill because of her newly diagnosed Leukemia.  Since then they have confirmed that she has APL Leukemia.  They also found that she had a brain bleed, which was brought on by the Leukemia.  When they first saw the bleed on the Catscan they felt it was best to just keep an eye on it and most importantly to start her on her chemo and ATRA treatments.

Thursday she had a set back, when we later found out that she had a stroke.  At that point they moved her to a higher level of ICU for more intensive care. UNC Chapel Hill has provided her with a large team of doctors, from Oncology, Hemotology, Neurology and Neurosurgical and wonderful caring nurses that have given her the best care possible.

Things were touch and go over the weekend but on Monday we started to see some improvement.  In true Pamela form she is fighting hard and she is improving every day.  We are hoping they will be able to move her to the Oncology ward to finish up her her month long treatments in the next day or so.

They will continue to keep a close eye on her because she is a complicated case but we know she is a fighter and she has many wonderful friends covering her with their prayers and support.

We have read her all the wonderful notes of encouragement and it really makes her day.  Please continue to pray for her as the road ahead will be a long one, but one we KNOW she is an OVERCOMER!

One of the things that I started yesterday was a central line. It was in no way fun, but I am so glad to have it in now.

You can see a new bruise that I have developed in my right eye.The bruises I do have ... have become tremendous.  The oncologist thinks they are not actually bruises any more - they actually my cancer trying to leave my body.

The chemo that I have started so far have been pills that I have taken under the name of ACRA.  So far that has been quite mild.  But having the central line in has been a HUGE help because fact that I do bruise so easily makes getting blood every 3-4 hours at the hospital  extremely challenging. I am a difficult stick to begin with - add that to someone who is swollen and bruised EVERYWHERE - it's been a nightmare.

Word has it that I will be adding infusion chemo tomorrow and it will be a bit more serious.  I will experience some nausea,sores on the inside of my mouth (which I experienced at the ER until they increased my platelets) losing my hair (hello purple wig!)

Unexpected - bruises.

How some of my bruises started:

This was Monday night after just getting them on Sunday night and I was thinking to myself this an't be an allergic reaction to a new medication. Nowhere in my mind was I thinking leukemia.

Unexpected - LEUKEMIA

So my last post was called "Unpexected" how little did I know just how Unexpected a turn my life was going to take.

I have struggled with whether I make this long story short - or just start from the beginning.  I will just start from the beginning since eventually  I will have to go back there anyway,

So Sunday my husband and I were out and about buying a car that we have been searching for  for literally years.  So excited that we were able to finally find it and afford it after my bonus at my new job..  But after a long day I was tired and exhausted and just wanted a nap. My husband noted that I had some new bruises on me and was like "WHOA! you better check this out.". I looked at the bruise and it was hard underneath. As I continued to undress we found many more bruises that were hard underneath.

I called the PCP on call.  Their best guess was that it was a rare reaction to new medication. But to come see my PCP on Monday

So I came in Monday morning and saw the most comparable Dr. Bloom.  He also did not think that I was presenting with erythema nodosum. But he wasn't sure what else what it could be.  He took some bloodwoork as well as a strep test, and gave me some pain medicine for some awful joint pain and headache I was having.  Told me to keep an eye on the bruises - if thy were getting bigger - more frequent, etc...

Monday night was awful - very difficult to sleep, etc...

Tuesday morning Dr. Bloom called Daren and said "Call EMS and get her to the ER immediately. Her bloodwork  is very concerning."

We went right to the ER.  We had to do some initial waiting, but not a lot. I was taken back to have a head CT, but pretty much as soon.  The  ER doc came into where we were and point blank said "I believe you have leukemia."

You want to talk about Unexpected? This was not what I had I had expected people. I am almost 5 years out from Renal Cell Carcinoma. I was expecting to celebrate that.

My new normal.... I have taken up residence at UNC Chapel Hill Hospital. I have already had my first chemo.

I have had to tell my children that their children have cancer, yet again.

UNEXPECTED.  More to come.

Unexpected

I have been involved with Upward  Cheerleading for several years. I had signed my girls up to participate when they were in kindergarten and immediately volunteered to help as a coach.  I was quickly tapped to help out further as the Commissioner of the League and served in that capacity for several years before having to step down because life was getting so crazy hectic.

But I have always loved Upward - what it was accomplishing - the people that I worked with, etc...

My daughters are about to age out and I had let Seth - the Director of the league know that he better take advantage of me this year while he could!  :)  So he asked me if I would be willing to do the devotions during halftime at one of the games.  That is probably the one thing I haven't done in all the years I have worked with Upward. I have led practices, kept the scoreboards, helped with snacks, you name it, but I have not led devotions at halftime in front of everyone attending a game.

So I, of course, said yes.  And then I struggled with what on earth I would say - and of course, that I had to say it in front of all those people.

Here is what I said.  Sorry for all of the background noise. My lovely husband did the best he could recording it.

Glimmer

So this is just a random post about an app I got that I am kinda digging.

I got it for my phone off of Google Play. It's an alarm app called Glimmer.

Yes, I'm well aware that my phone already comes with an alarm. Got that. Why is this one so special? Because I love the way it wakes me up. It softly wakes me up.

It turns on the screen 30 minutes before the alarm goes off with the darkest screen and slowly increases the brightness. It starts to wake you up 30 minutes before the alarm goes off, first by gradually brightening the screen, and then also by increasing the soft sounds of birds singing. If none of this works for you and you haven't woken up by 1 minute after alarm time, it plays a strong sound to be sure you don’t miss it. At this time it also goes from "night" mode (not allowing the notifications for emails, texts, etc...) to "day" mode.

The app is free in Google Play - and I loved having the free version. If you choose to upgrade to the paid version (for like a couple of bucks - literally helping the developer by some coffee) you are able to customize all the settings - like how long it takes to wake you up in the morning - which sounds it uses to wake you vs. alarm you. There are a few more background options for the picture that comes alive as your wake up time approaches. All of them are so great and fun. Some are techie, some are nature. When I was able to customize it I went from the 30 minute wake up time to 15 minute - that worked just fine for me.

I find that I am without fail up before my alarm goes off now. At least 5 minutes. I wake up much more gradually - like more gracefully and naturally instead of pissed off at my alarm clock.

So get you some and wake up a little more gracefully.